Resources
Share your experience with Bodywhys
Share Your Story
Bodywhys shares peoples experiences of living with an eating disorder on their website and social media account. The personal stories page provides guidance about how to share your story. .
Personal stories about living with an Eating Disorder
Personal stories about living with an Eating Disorder.
Personal stories page where young people and adults share their living with an Eating Disorder.
Personal stories about living with Diabetes
Personal stories about living with Diabetes.
Visit the Living with Type 1 and Type 2 Diabetes and latest news page for personal stories of living with Diabetes.
Personal stories about living with Cystic Fibrosis
Personal stories about living with Cystic Fibrosis.
Personal stories page where young people and adults share their living with Cystic Fibrosis.
Bodywhys- The Eating Disorder Association of Ireland
bodywhys.ie/ | [email protected] | +353 1 2107906
Bodywhys delivers support and information services to people affected by eating disorders and family members throughout Ireland. An eating disorder diagnosis is not required to access support services provided by Bodywhys.
Bevin’s Transition story
Bevin tells how she felt excited about making the transition
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Becoming Independent
Becoming more independent is a natural part of life and happens at different stages for different people. As you achieve more independence and understand your responsibilities, you should be included in decisions that are made about your health care.
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SpunOut – Money
spunout.ie
Youth information service SpunOut provides excellent information for youth about managing their money, saving, dealing with financial stress and a range of other money related topics.
BeLonG To (for LGBTI+ young people)
belongto.org
Belong To youth services is the national organisation supporting lesbian, gay, bisexual, transgender, and intersex (LGBTI+) young people between 14 and 23 years in Ireland.
AHEAD
ahead.ie/
Ahead provides information for students with a disability about accessing college or further education, supports available while in college and seeking employment after college. The AHEAD website provides a wide range of information and students can also contact the AHEAD information officer with queries about disability in 3rd level education or employment.
SPUNOUT – Entitlements for people with disabilities
spunout.ie
Youth website SPUNOUT provides a useful information page for people with disabilities. Youth aged 16 – 25 can also contact the online chat service for advice – Monday to Friday 4pm – 8pm.
Spunout
spunout.ie/
Spunout is Ireland’s youth information website created by young people, for young people. This youth focused websites provides information about education, employment, health and wellbeing, managing finances, mental health, LGBTI+, sex and relationships and more.
Heart Children
heartchildren.ie/ | [email protected] | +353 1 8740990 or +353 85 723 7797
Heart Children is a charity that raises awareness, provides support and information and fundraises for Children with congenital heart defects in Ireland. Heart Children provide annual transition conferences for your Transition into adult health care
Epilepsy Ireland
epilepsy.ie | [email protected] | +353 1 455 7500
Epilepsy Irelands offers a range of services to support people with epilepsy and their families.
Diabetes Ireland
diabetes.ie | [email protected] | +353 1 842 8118
Diabetes Ireland provides support, information and education to people of all ages living with diabetes.
Childhood Cancer Ireland
childhoodcancer.ie | [email protected] | +353 1 554 5655
Childhood Cancer Ireland is a charity founded by and led by parents of children with cancer and cancer survivors.
Cystic Fibrosis Ireland
cfireland.ie | [email protected] | 1800 832 022
Cystic Fibrosis Ireland provides useful information, resources, advocacy and funding supports for people with cystic fibrosis and their families.
Ciara’s Transition story
Ciara talks about the differences in adult services
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Key differences in adult health care services
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LGBT Ireland
lgbt.ie
LGBT Ireland provide a range of support services including LGBT helpline, transgender family support line, online chat and monthly peer support groups. They also provide information on a range of useful topics and to help you find supports in your area.
Text 50808
text50808.ie
50808 is a free, anonymous, 24/7 messaging service providing everything from a calming chat to immediate support. 50808 provides a safe space where you’re listened to by a trained Volunteer. You’ll message back and forth, only sharing what you feel comfortable with. By asking questions, listening to you and responding with support, they will help you sort through your feelings until you both feel you are now in a calm, safe place.
Citizens Information Bureau Information Guide for school leavers
Information for School Leavers 2022
This useful guide provides information for youth preparing to leave school, enter education or employment and preparing for becoming more independent.
Citizens Information Bureau (CIB) – Disability and Illness
citizensinformation.ie
CIB provides information about government supports and entitlements available to people with disabilities or illness. You can also contact CIB by telephone or by visiting your local Citizens Information Centre.
CIB has also prepared a useful Guide to Entitlements for people with disabilities/illness
Digital Youth Information Chat Service
youthworkireland.ie
Available from 4pm to 8pm for to young people aged between 16 and 25, the chat service is as easy to use as WhatsApp. You can message a Youth Information Worker with any questions you have about education, employment, your rights and entitlements, social protection benefits, college grants, accommodation, and more. We can give you information, answer your questions, and provide you with a second opinion.
Adolescents and Young Adults
Adolescents and Young Adults
Adolescents and Young Adults provides information to help young people know what to expect with their diagnosis and treatment and advice on a range of topics such as further education and finding support.
Daniel’s Transition story
Daniel advises young people to learn more about their condition
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Know about your medication and treatment
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YouthWork Ireland
youthworkireland.ie
Youth Information Centres throughout Ireland (YICs) provide a free, confidential information service to young people on a wide range of subjects including careers, education, employment matters, rights and entitlements, leisure, sport, travel and European opportunities.
Deirdre’s Story
Deirdre's Story
Childhood Cancer Ireland is a charity founded by and led by parents of children with cancer and cancer survivors. They work to help to ease the burden of diagnosis and treatment on children and their families by raising funds to provide practical and emotional supports. Their information page for
Personal stories about living with Epilepsy.
Personal stories about living with Epilepsy.
Personal stories page where young people and adults share their living with Epilepsy.
Brain Tumour Ireland | The Ronnie Fehily Foundation
braintumourireland.com | [email protected] | +353 085 721 9000
Brain Tumor Ireland is a place people can come for information, guidance and comfort.
Darren’s Transition story
Darren feels he has a good relationship with his new health care team
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Barnardo’s Ireland
barnardos.ie
Barnardo’s teen well-being page offers information on a range of issues from school, friends and parents to depression, alcohol and drugs. The Barnardo’s website also has a useful information page with details of organisations and websites for young people.
Get Involved with Epilepsy Ireland
Become a Volunteer
Epilepsy Ireland requires media volunteers - people who are willing and able to communicate their experience with epilepsy to others. Sharing your experience can be on radio, TV or in print, or even on Epilepsy Ireland’s social media channels.
Salty Soldiers
Salty Soldiers
This is a page set up by a group of young people with Cystic Fibrosis to reach out and motivate other young people with CF. On this page they share their stories and experiences and keep people up to date on many aspects to do with CF.
Canteen Ireland | Young peoples cancer support
canteen.ie | [email protected] | +353 1 872 2012
CanTeen Ireland is a nationwide support group for young people between the ages of 12 and 25 years who have or have had cancer.
Lauren’s Transition story
Lauren talks about asking questions and getting prepared for transition
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Questions to ask
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Get Involved with Heart Children
[email protected]
Heart Children have a youth advisory group made up of young people with CHD, who come together to discuss the topics that matter to them. Contact Heart Children for more information.
Cystic Fibrosis UK
Cystic Fibrosis UK
Cystic Fibrosis UK has partnered with young people with CF who have transitioned to adult care to develop resources to support other young people with CF and their parents through transition. Please note this is a UK based website and services and supports described are not available in Ireland.
Types of cancer | Young Lives vs Cancer
younglivesvscancer.org.uk/life-with-cancer/types-of-cancer/
The Young Lives Vs Cancer Website has useful information about types of cancer and a range of resources for young people.
Please note this is a UK based website and services and supports described are not available in Ireland.
Young Adult Programme – Barretstown
barretstown.org
Offering an age-appropriate camp experience to adolescents & young adults between the age of 18yrs-24yrs.
Róisín’s Transition story
Róisín brought her Mam to the first visit at the adult clinic for support
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The first visit to the adult clinic
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Type 1 Diabetes and College Life
Type 1 Diabetes and College Life
This booklet aims to support students living with Type 1 diabetes who are going to 3rd level education.
Get Involved with Cystic Fibrosis Ireland
CF Ambassadors | Cystic Fibrosis (cfireland.ie)
Cystic Fibrosis Ireland are seeking CF Ambassadors. The Ambassadors can share their stories, experiences and insights to help raise awareness and support fundraising campaigns and events.
Childhood Cancer Ireland Webinar | The transition to third level for young people affected by childhood cancer.
The transition to third level for young people affected by childhood cancer.
This webinar aims to provide information and advice on moving through the senior cycle and moving onto higher and further education.
Talking to your healthcare team
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Childhood Cancer Ireland Webinar | The Right Fit: Alternative Pathways to Further and Higher Education
The Right Fit: Alternative Pathways to Further and Higher Education
This webinar explores the different educational routes available to childhood cancer survivors, providing a variety of options for young people to consider as they start to think about their lives beyond secondary school.
Thinking About Transition Top Tips
It’s time to start thinking about your transition to adult health care services, but where to start?
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Get Involved with Childhood Cancer Ireland
[email protected]
Childhood Cancer Ireland have created a space on our website to share stories and to honour the experiences of children and young people with childhood cancer and their families. If you would like to share your story, please contact Childhood Cancer Ireland at [email protected]
Planning Your Transition Top Tips
It’s time to plan your transition to adult health care services, here’s some tips to help you.
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Making the Transition Top Tips
Top tips to plan your transition to adult health care services.
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